My Journey

Butterfly needles. IVs. Bedpans. Noisy medical machines. Gauze. Alcohol. Frigid stethoscopes. There’s no rest, there’s no privacy and there’s no promises.  There is however worry, uncertainty, anger, and fear. This. This is how it feels to be a perpetual, continual, regularized chronically ill patient. You sit and lie in the hospital bed or emergency room for hours and hours on end waiting to get your vitals taken, your labs taken, keeping conversations with hospital staff at surface level, seeing other patients suffering. You wait for hours to talk to your doctor for 2 minutes reporting how well or inadequate your condition is and the limited options there are to fix it.